Tuesday, August 25, 2009

Update #2

Thanks so much for all of you who have offered prayers and encouragement on behalf of us and our little girl. We feel so supported and see progress in tiny ways.

It's hard to believe she's only been alive for almost four days. We had to come home without her yesterday, which was incredibly difficult for us, obviously. It was especially tough because right before we left, they had to put her back on the CPAP (continuous positive airway pressure). It's the big blue tube in her nose you see in the pictures. Again, it's not that she can't breathe on her own, she just sometimes needs a little encouragement. It just felt like a huge step backwards right before we had to leave her.

We did, however, have a very encouraging night last night. The IV that was going into her belly button to give her antibiotics and medication came out. Since we had to be so careful not to accidentally pull the line out, we haven't been able to do simple little things like change her diaper or snuggle with her. We are now able to do both of those things. Snuggling is definitely the best.

Today we've seen improvements as well. Even though she is still on the CPAP, they put her back on the smaller machine so we can feed her. Tonight she ate 3mLs from a bottle. We're working on teaching her sucking and swallowing. The sooner she can learn this, the sooner we can bring her home. We met with a speech therapist and a physical therapist to learn some tricks to help stimulate her and it seems to be working. It's difficult because the amount of medication she's on for the seizures makes her very drowsy and it's tough to keep her awake.

We know you all will continue to pray. Some very specific things would be that she can be taken off the CPAP and not have to go back on it. Also, we'd like to see her eat more and more from the bottle. Please also pray for the nurses and doctors who are taking such wonderful care of her, for continued wisdom as they treat her. She's also having another EEG tomorrow to see how her brain functions have been these past few days. Pray for a good report.

We just can't say enough how thankful we are for all of you. Our God has certainly blessed us through you. Thank you, thank you, thank you.

1 comment:

  1. Jen, we would like to be added to your prayer warriors! (Molly told us your news.)
    I will check back on this blog and continue to pray for your precious Lydia and you ALL!
    love, kim (and dale carr)