OK, people. We’re on for tonight. I know it’s cold and rainy and maybe you feel like too many people are probably going to be there, so you shouldn’t bother coming. BUT YOU SHOULD TOTALLY COME. OK? OK.
Just real quick, she’s having a little bit more of a rough day. She’s had a couple seizures with desats today, but nothing too severe. We just want you to be prepared. The seizures aren’t particularly scary to watch. She stops breathing and there is a jerking motion in her legs or face. She’s been recovering fine from all the episodes so far, and we’re expecting that will continue through this evening.
Again, we really hope to see you.
In August of 2009 God changed our lives by giving us a beautiful little girl. Lydia was born with Zellweger Syndrome. Lydia went to be with Jesus in April of 2010. This is the story of her life and death, and of our journey through grief in search of healing.
I'm wishing I could be there... Blessings to you guys!
ReplyDeleteI am not sure if you remember, but I am one of the nurses at Bridgeport's NBICU. I cared for Lydia a few times while she was here. I wish I could have come to the open house, but I was at work. I love reading about Lydia's life and your life together. She is just as beautiful as I remember!
ReplyDeleteLucy