Lydia Eileen

Remember that pulmonary edema we all thought was clearing up because they told us at the hospital that it was clearing up? Funny story. We went for another chest x-ray on Friday. Turns out, her lungs are still just as full as they were the Friday before. And it's just a huge mystery as to why. One theory is that it's a condition she's had for awhile and that she's adapted to it, but last week (for whatever reason) it got to be too much for her. Her oxygen levels have been totally fine since we brought her home, so again, we are stumped by her. There's a slight chance (although no one thinks this is what it is) that she has pneumonia so she's been started on an anti-biotic, just to make sure.

Thankfully, the stop-breathing seizures have passed. She's still seizing very regularly - several times an hour. But she's hanging in.

Here are some photos from the past couple days.

New outfit from mom! Instead of Christmas, I just buy her clothes and give them to her immediately. I see nothing wrong with this.

This is Sarina. We love Sarina.

Lydia's hand-print ornament hanging on our tree.

We made a gingerbread house!

And watched "A Charlie Brown Christmas"!

Lydia and the final product. She was thrilled.

Super cute outfit from Cathy!

This is possibly my new favorite picture of Lydia.