Friday, September 25, 2009
Update - September 25
Today is (hopefully but more than likely) the day! Lydia had a good night last night and we’re thinking they’ll be kicking us out around 1pm today! While this is terribly exciting for us, there are some other things we wanted you to know as we celebrate this day. This might be kind of a downer, but we want everyone to understand what’s happening.
You’ve seen in our update that she isn’t exactly 100% stable. Though she’s doing a lot better, it’s clear that her medication is not going to control her seizures for long without them breaking through. When we were speaking with the doctors yesterday, the conversation turned to why they were so eager to get her home. The doctor said he feels like the window of opportunity to bring her home is closing, and he wants us to bring her home before it closes altogether. We asked him to be blunt with us, so don’t think he was being inconsiderate.
What this seems to boil down to is that her time is short. We don’t know how short, but it’s definitely looking more like weeks than months, if not days. Again, I know. It’s harsh and blunt, but we don’t want anything to come as a surprise to anyone. We don’t know what this will mean for an open house. We’re still trying to figure things out. If we don’t end up going through with it, we hope you’ll understand. We’ll let you know when we have a plan.
For now, we are amazed and thankful that God has opened the door for us to bring her home so that we can be a family here for whatever time He has given. We prayed last night as we always do - thanks for her life, protection through the night and healing for our sweet girl. We still have faith in a mighty God who can heal and we won’t stop asking that of Him. As always, we rest in His love, knowing that no one loves Lydia more than He does and that His will is perfect.
Stay tuned for LYDIA’S HOMECOMING PICTURES! I can’t wait for you to see the outfit I’ve been saving to bring her home in! Hopefully it still fits...