Today is (hopefully but more than likely) the day! Lydia had a good night last night and we’re thinking they’ll be kicking us out around 1pm today! While this is terribly exciting for us, there are some other things we wanted you to know as we celebrate this day. This might be kind of a downer, but we want everyone to understand what’s happening.
You’ve seen in our update that she isn’t exactly 100% stable. Though she’s doing a lot better, it’s clear that her medication is not going to control her seizures for long without them breaking through. When we were speaking with the doctors yesterday, the conversation turned to why they were so eager to get her home. The doctor said he feels like the window of opportunity to bring her home is closing, and he wants us to bring her home before it closes altogether. We asked him to be blunt with us, so don’t think he was being inconsiderate.
What this seems to boil down to is that her time is short. We don’t know how short, but it’s definitely looking more like weeks than months, if not days. Again, I know. It’s harsh and blunt, but we don’t want anything to come as a surprise to anyone. We don’t know what this will mean for an open house. We’re still trying to figure things out. If we don’t end up going through with it, we hope you’ll understand. We’ll let you know when we have a plan.
For now, we are amazed and thankful that God has opened the door for us to bring her home so that we can be a family here for whatever time He has given. We prayed last night as we always do - thanks for her life, protection through the night and healing for our sweet girl. We still have faith in a mighty God who can heal and we won’t stop asking that of Him. As always, we rest in His love, knowing that no one loves Lydia more than He does and that His will is perfect.
Stay tuned for LYDIA’S HOMECOMING PICTURES! I can’t wait for you to see the outfit I’ve been saving to bring her home in! Hopefully it still fits...
You are all on our hearts and in our prayers.
ReplyDeleteIn Christ's Love,
Frank and Cheryl Persico
Praying for strength for you as you bring your little girl home. I know how hard it is to face these harsh realities from the Doctors, but also know that miracles do happen. Your beautiful little girl is in my prayers today.
ReplyDeleteWe totally love you guys...All of our days are numbered, and we are praying that you can somehow make some good memories in the days ahead.
ReplyDeletePeter & Denise
I am sure you are soaking up every moment with Lydia and just giddy at the prospect of taking her home. What a blessing to be a family under the same roof after all this time! I am covering you in prayers and trust God's perfect will and his ability to heal...never stop asking Him for even the smallest things. Jesus stands with you, active in this journey, never leaving your side...never forget that. Our Jesus is not a passive savior and He intercedes on your behalf to the Father. Find your rest in all the truth you have hidden in your heart all these years as faithful Christians. All your energy needs to be for Lydia and each other. Let everything else fall by the wayside...this is your time to do what you need to do as a family. My heart is with you! -Rachel
ReplyDeletewe will be praying for you that everything goes well for your baby&your family.Know that you are in our hearts and prayers
ReplyDeleteHow sweet it is to see your beautiful Lydia, and see glimpses of our own Hope and Gabriel in her. I'm praying for your bittersweet homecoming today—that it will be more sweet than bitter, praying that God will give you the grace you need to embrace the joy of having her here and now and the grace you need to endure all that is to come.
ReplyDeleteSharing your joy and sorrow—
Praying for your sweet daughter Lydia, what a beautiful name. May God give you more time to love her.
ReplyDeleteMy heart hurts for you, but I am rejoicing that the opportunity is there to take you precious daughter home! I pray for Lydia and will continue to plead to God for a miracle and healing. Lots of love to the sky!
ReplyDeleteXX
As a NICU mom, I was given a piece of advise that I would not have thought of.
ReplyDeleteWhen Lydia comes home, don't make the house quite. She is use to the noises and coming and goings in the NICU.
I hope she comes home today.
I am so glad you are going to be able to bring Lydia home with you and be together there as a family. So much better than being at the hospital. I know that God will be with you through this time and give you strength and peace during the days ahead. Thank you for letting me be part of this journey with you.
ReplyDeleteRead about your baby Lydia on Franchesca's blog and am holding you and your baby in prayer. She is beautiful and a blessing. Thinking of you.
ReplyDeleteWhat a wonderful day it is for sure. Have been prayerfully reading your posts while traveling around the globle as always for work.
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